I was shocked I could have such a condition at such a young age, but after research, realised I was not alone!
It's often helpful to hear how other people cope with a PsA diagnosis and how they get on with their life. Read Anne's story here.
I was 18 years old when I first got my symptoms (27 years ago). It took 18 months for me to get the correct diagnosis, which was very frustrating, but I was very relieved when I received it, at least I knew what I was dealing with. I was shocked I could have such a condition at such a young age, but after research, realised I was not alone!
There was a severe lack of information out there when I was diagnosed, as the internet was still very basic, so I turned to books, which gave tips on diet and exercise. I talked to my friends and family, who were very supportive, however, people who did not know me used to say “Gosh, you are young to have arthritis!”.
I had never been the most active person before diagnosis, but I was determined to join the police, so I pushed through and managed to get my fitness up through gentle walking, then running. I refuse to let it “beat me”, but I have had to be careful, like not lifting heavy shopping bags, being careful with my diet etc. I have learnt to adapt, such as carrying bags on my forearms, internet shopping, hiring a cleaner, just so I can protect my joints. I managed 17yrs in the police, which I was very proud of, eventually having to retire on ill health, but still work full time in another job.
Most days, I just try and get on with life, working, being a mum and wife. But some days, I know I have to rest and “recharge”. I also adapt my working day, if I am in more pain or have brain fog, I do the more simple tasks, so not to make any mistakes. I am a very positive person, but do allow myself the odd day to feel a little sorry for myself, which I feel is important for me. It took me a few years to accept I had this condition, but once I had, I felt more in control. This positive attitude, I found at first, hindered me getting help from my consultant as I would say “I’m fine”, but the last few years I am honest with my consultant, accepting the help and support I actually need.
If I were newly diagnosed today, I would do as much research on how to help my condition, and not look at the future prognosis so much, as this could make me defeatist. Looking after myself mentally and physically is probably the most important thing, and to make sure I put myself first when I can. I would be more honest with my consultant on how I was feeling, rather than trying to battle on. Sometimes it is really hard to describe how you are feeling, like nerve pain or brain fog. I find it useful to keep a diary of how I have been feeling, so you can look back and assess how the last few months have been. I feel very excited about the recent research which is going into my condition and the development of new treatments.